{"id":120796,"date":"2024-08-24T15:52:05","date_gmt":"2024-08-24T13:52:05","guid":{"rendered":"https:\/\/vosgesinfo.fr\/epinalinfo\/?p=120796"},"modified":"2024-08-24T15:52:05","modified_gmt":"2024-08-24T13:52:05","slug":"atteinte-dune-maladie-musculaire-cecile-petitjean-a-besoin-dune-maison-adaptee","status":"publish","type":"post","link":"https:\/\/vosgesinfo.fr\/epinalinfo\/2024\/08\/atteinte-dune-maladie-musculaire-cecile-petitjean-a-besoin-dune-maison-adaptee\/","title":{"rendered":"Atteinte d’une maladie musculaire, C\u00e9cile Petitjean a besoin d’une maison adapt\u00e9e"},"content":{"rendered":"

\"\"<\/a>Originaire d’Epinal, C\u00e9cile Petitjean, 26 ans, est atteinte d’une maladie musculaire qui l’handicape dans son quotidien. Elle a d\u00e9cid\u00e9 de demander de l’aide en cr\u00e9ant une cagnotte Leetchi<\/a> pour financer et r\u00e9aliser une petite d\u00e9pendance de 60m2 dans le jardin de ses parents.<\/h2>\n

C\u00e9cile Petitjean a 26 ans et elle habite \u00e0 Epinal. A l’\u00e2ge de 18 ans, elle a \u00e9t\u00e9 diagnostiqu\u00e9e d\u2019une maladie musculaire qui s\u2019appelle dysferlinopathie, ou plus commun\u00e9ment appel\u00e9 myopathie des ceintures.<\/p>\n

\u00ab\u00a0Depuis mon diagnostic j\u2019ai la rage de vivre je me bats, je faisais tout toute seule, avec l\u2019aide d\u2019une canne j\u2019arrivais \u00e0 marcher, seule, avec assurance, avec force. Seulement, depuis 1 an, mon combat s\u2019intensifie, je ne peux plus me d\u00e9placer seule avec ma b\u00e9quille. J\u2019ai besoin d\u2019une personne pour me maintenir, et seulement pour faire quelques m\u00e8tres pas plus, pour les grosses sorties comme les courses ou le shopping, je suis oblig\u00e9e d\u2019\u00eatre dans un fauteuil.. mais faute de moyen c\u2019est seulement un fauteuil de transfert, je ne peux pas avancer seule j\u2019ai toujours besoin de quelqu\u2019un pour m\u2019assister.\u00a0\u00bb explique-t-elle.<\/p>\n

C\u00e9cile Petitjean veut tout de m\u00eame \u00eatre ind\u00e9pendante. \u00ab\u00a0Je suis tr\u00e8s bien chez mes parents en mati\u00e8re d\u2019accompagnement et d\u2019amour au quotidien. Pour autant, la maison n\u2019est plus adapt\u00e9e au vu de l\u2019\u00e9volution de ma maladie.\u00a0\u00bb<\/em> poursuit-elle. En effet, il y a des escaliers pour acc\u00e9der \u00e0 la salle de bain et aux toilettes. Elle a des difficult\u00e9s pour les monter. La maison est \u00e9galement \u00e9quip\u00e9e d’une baignoire et elle ne peut pas y acc\u00e9der toute seule. \u00ab\u00a0Alors maman, papa, sont l\u00e0, ils portent mes jambes quand je n\u2019ai plus de force, ils me portent m\u00eame quand cela devient trop compliqu\u00e9.\u00a0\u00bb<\/em> commente la jeune femme.<\/p>\n

Mais cette situation reste difficile \u00e0 vivre pour elle. Alors C\u00e9cile Petitjean a d\u00e9cid\u00e9 de demander de l’aide en cr\u00e9ant une cagnotte leetchi<\/a> pour financer et r\u00e9aliser une petite d\u00e9pendance de 60m2 dans le jardin de ses parents. Un lieu adapt\u00e9 \u00e0 son quotidien.<\/p>\n

Retrouvez la cagnotte en ligne : https:\/\/www.leetchi.com\/fr\/c\/une-maison-adaptee-pour-la-vie-1244951<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

Originaire d’Epinal, C\u00e9cile Petitjean, 26 ans, est atteinte d’une maladie musculaire qui l’handicape dans son quotidien. Elle a d\u00e9cid\u00e9 de […]<\/p>\n","protected":false},"author":52,"featured_media":120802,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[22,24,192,5],"tags":[],"class_list":["post-120796","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-a-la-une","category-epinal","category-solidarite","category-vosges"],"acf":[],"yoast_head":"\nAtteinte d'une maladie musculaire, C\u00e9cile Petitjean a besoin d'une maison adapt\u00e9e - Epinal Info<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/vosgesinfo.fr\/epinalinfo\/2024\/08\/atteinte-dune-maladie-musculaire-cecile-petitjean-a-besoin-dune-maison-adaptee\/\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:title\" content=\"Atteinte d'une maladie musculaire, C\u00e9cile Petitjean a besoin d'une maison adapt\u00e9e - Epinal Info\" \/>\n<meta name=\"twitter:description\" content=\"Originaire d’Epinal, C\u00e9cile Petitjean, 26 ans, est atteinte d’une maladie musculaire qui l’handicape dans son quotidien. Elle a d\u00e9cid\u00e9 de […]\" \/>\n<meta name=\"twitter:image\" content=\"https:\/\/vosgesinfo.fr\/app\/uploads\/sites\/3\/2024\/08\/thumbnail-image0-scaled.jpg\" \/>\n<meta name=\"twitter:creator\" content=\"@VosgesInfo88\" \/>\n<meta name=\"twitter:site\" content=\"@VosgesInfo88\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"C.K.\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/vosgesinfo.fr\/epinalinfo\/2024\/08\/atteinte-dune-maladie-musculaire-cecile-petitjean-a-besoin-dune-maison-adaptee\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/vosgesinfo.fr\/epinalinfo\/2024\/08\/atteinte-dune-maladie-musculaire-cecile-petitjean-a-besoin-dune-maison-adaptee\/\"},\"author\":{\"name\":\"C.K.\",\"@id\":\"https:\/\/vosgesinfo.fr\/epinalinfo\/#\/schema\/person\/6f9a650eeea99d969b6c4ab78fccbe81\"},\"headline\":\"Atteinte d’une maladie musculaire, C\u00e9cile Petitjean a besoin d’une maison adapt\u00e9e\",\"datePublished\":\"2024-08-24T13:52:05+00:00\",\"dateModified\":\"2024-08-24T13:52:05+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/vosgesinfo.fr\/epinalinfo\/2024\/08\/atteinte-dune-maladie-musculaire-cecile-petitjean-a-besoin-dune-maison-adaptee\/\"},\"wordCount\":397,\"commentCount\":1,\"publisher\":{\"@id\":\"https:\/\/vosgesinfo.fr\/epinalinfo\/#organization\"},\"image\":{\"@id\":\"https:\/\/vosgesinfo.fr\/epinalinfo\/2024\/08\/atteinte-dune-maladie-musculaire-cecile-petitjean-a-besoin-dune-maison-adaptee\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/vosgesinfo.fr\/app\/uploads\/sites\/3\/2024\/08\/thumbnail-image0-scaled.jpg\",\"articleSection\":[\"A la Une\",\"Epinal\",\"Solidarit\u00e9\",\"Vosges\"],\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/vosgesinfo.fr\/epinalinfo\/2024\/08\/atteinte-dune-maladie-musculaire-cecile-petitjean-a-besoin-dune-maison-adaptee\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/vosgesinfo.fr\/epinalinfo\/2024\/08\/atteinte-dune-maladie-musculaire-cecile-petitjean-a-besoin-dune-maison-adaptee\/\",\"url\":\"https:\/\/vosgesinfo.fr\/epinalinfo\/2024\/08\/atteinte-dune-maladie-musculaire-cecile-petitjean-a-besoin-dune-maison-adaptee\/\",\"name\":\"Atteinte d'une maladie musculaire, C\u00e9cile Petitjean a besoin d'une maison adapt\u00e9e - 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