{"id":53138,"date":"2021-06-02T06:54:00","date_gmt":"2021-06-02T04:54:00","guid":{"rendered":"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2021\/06\/margots-smile-entre-barcelone-bas-rupts-nouvel-elan-jeune-fille\/"},"modified":"2021-06-02T06:54:00","modified_gmt":"2021-06-02T04:54:00","slug":"margots-smile-entre-barcelone-bas-rupts-nouvel-elan-jeune-fille","status":"publish","type":"post","link":"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2021\/06\/margots-smile-entre-barcelone-bas-rupts-nouvel-elan-jeune-fille\/","title":{"rendered":"Margot’s Smile : entre Barcelone et les Bas-Rupts, un nouvel \u00e9lan pour la jeune fille"},"content":{"rendered":"\n\n

Des nouvelles de la petite Margot, jeune fille atteinte du syndrome d’Angelman, maladie g\u00e9n\u00e9tique particuli\u00e8rement rare. D\u00e9sormais scolaris\u00e9e \u00e0 l’\u00e9cole des bas Rupts, elle vient de passer deux semaines \u00e0 Barcelone pour y suivre un <\/span> stage intensif au centre Essentis.<\/span> <\/span><\/h3>\n

C’est en effet une nouvelle \u00e9tape, un nouvel \u00e9lan dans la vie de la petite Margot qui est scolaris\u00e9e en inclusion aux Bas Rupts o\u00f9 elle se rend deux fois par semaine, dans la classe des petits, depuis novembre dernier. Ses parents avaient souhait\u00e9 cette inclusion, soutenus par les parents d\u2019\u00e9l\u00e8ves de l’\u00e9cole. La jeune fille \u00e9volue ainsi dans une classe de 20 \u00e9l\u00e8ves (petite, moyenne grande section et CP) et b\u00e9n\u00e9ficie de la bienveillance de ses camarades qui prennent soin d\u2019elle et qui sont m\u00eame un peu maternant avec elle. Globalement, c’est un bel \u00e9change qui se met en place, une belle alchimie qui se cr\u00e9e entre les enfants, pour le plus grand plaisir des parents.<\/p>\n

Autre point positif, Margot et ses parents sont partis \u00e0 Barcelone fin mai afin que la jeune fille puisse y suivre un stage autour de la m\u00e9thode Essentis. Il s’agit d’une m\u00e9thode intensive de stimulation musculaire<\/span><\/span>, de travail de l\u2019\u00e9quilibre, dont l’objectif \u00e9tait notamment, lors de ce stage, de parvenir \u00e0 faire marcher Margot et de lui faire prendre confiance en elle. Au programme, beaucoup de travail en piscine et avec un d\u00e9ambulateur post\u00e9rieur, mais aussi beaucoup de kin\u00e9, de motricit\u00e9, le tout saupoudr\u00e9 d’acupuncture et d’ost\u00e9opathie dans un centre qui traite de nombreux handicaps avec une aile sp\u00e9cifique pour la r\u00e9\u00e9ducation. Margot a notamment \u00e9t\u00e9 suivie par deux \u00ab\u00a0tuteurs\u00a0\u00bb qui se nommaient Alex et Val\u00e9rio et qui parlaient fran\u00e7ais.<\/p>\n

En seulement deux semaines, elle a fait des progr\u00e8s consid\u00e9rables puisqu’elle se tient debout et semble de tout \u00e9vidence \u00eatre devenue plus s\u00fbre d\u2019elle ! Il serait donc souhaitable de renouveler le s\u00e9jour \u00e0 Barcelone au moins une fois par an avec un suivi. mais pour cela, rappelons\u00a0 que ce premier s\u00e9jour a \u00e9t\u00e9 possible gr\u00e2ce aux diff\u00e9rents dons et aux diff\u00e9rentes actions men\u00e9es par l’association Margot’s Smile<\/em> et ses partenaires : vente de foulards, la Broc’O kids, les repas aux Petits Boulas, le soutien du Kiwanis f\u00e9minin G\u00e9rardmer Perle d’Hugo, les s\u00e9ances de gym avec Nicole Dreller, ou encore l\u2019association de parents d\u2019\u00e9l\u00e8ves de l\u2019\u00e9cole. on notera d’ailleurs qu’il y a eu des \u00e9changes photos et vid\u00e9os avec la classe de Val\u00e9rie Valentin pendant la p\u00e9riode ou Margot \u00e9tait en Espagne afin de conserver un lien fort.<\/p>\n

Une marche le 6 juin prochain \u00e0 R\u00e9haupal<\/h4>\n

L\u2019association Margot’s Smile<\/em> envisage donc de mener d’autres projets et de participer \u00e0 d’autres actions maintenant que le contexte le permet \u00e0 nouveau : la Broc’O kids devrait avoir lieu en fin d\u2019ann\u00e9e et, d\u00e8s le 6 juin, \u00e0 R\u00e9haupal, vous \u00eates invit\u00e9s \u00e0 participer \u00e0 une manifestation en faveur de l’association fran\u00e7aise du syndrome d\u2019Angelman dont souffre Margot. l’objectif est de r\u00e9colter des fonds pour permettre de financer des s\u00e9jours \u00ab\u00a0r\u00e9pits\u00a0\u00bb aux parents d’enfants qui sont touch\u00e9s par le syndrome.<\/p>\n

Enfin, sachez qu’\u00e0 la rentr\u00e9e prochaine, Margot rentrera \u00e0 la Courtine dans un parcours mixte\u00a0: 3 fois par semaine dans l\u2019institution avec kin\u00e9, deux matin\u00e9es \u00e0 l\u2019\u00e9cole des Bas Rupts et deux fois par semaine chez la nourrice qui \u00ab\u00a0est comme une seconde maman\u00a0\u00bb pour la petite Margot.<\/p>\n

Pour en savoir plus : https:\/\/www.facebook.com\/margotSmile88\/<\/a><\/p>\n

\"balade<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Des nouvelles de la petite Margot, jeune fille atteinte du syndrome d’Angelman, maladie g\u00e9n\u00e9tique particuli\u00e8rement rare. D\u00e9sormais scolaris\u00e9e \u00e0 l’\u00e9cole […]<\/p>\n","protected":false},"author":42,"featured_media":53139,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[20,25,12,17],"tags":[673],"class_list":["post-53138","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-a-la-une","category-gerardmer","category-sante","category-vie-associative","tag-margots-smile"],"acf":[],"yoast_head":"\nMargot's Smile : entre Barcelone et les Bas-Rupts, un nouvel \u00e9lan pour la jeune fille - Gerardmer Info<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2021\/06\/margots-smile-entre-barcelone-bas-rupts-nouvel-elan-jeune-fille\/\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:title\" content=\"Margot's Smile : entre Barcelone et les Bas-Rupts, un nouvel \u00e9lan pour la jeune fille - Gerardmer Info\" \/>\n<meta name=\"twitter:description\" content=\"Des nouvelles de la petite Margot, jeune fille atteinte du syndrome d’Angelman, maladie g\u00e9n\u00e9tique particuli\u00e8rement rare. 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