![\"\"](\"https:\/\/vosgesinfo.fr\/app\/uploads\/sites\/6\/2026\/06\/flyer-portes-ouvertes-2026-1-201x300.jpg\")
<\/a>Et ce sera l’occasion de mettre \u00e0 l’honneur l’Association Smith Magenis 17 France, qui soutient et accompagne les personnes atteintes du syndrome de Smith Magenis et leurs proches. La participation de 5\u20ac pour le gouter sera revers\u00e9e \u00e0 cette association, qui accompagne en particulier un jeune gar\u00e7on du club, Armand, \u00e2g\u00e9 de 17 ans.
\nIl s’agit d’un syndrome g\u00e9n\u00e9tique rare qui se manifeste par un d\u00e9ficit intellectuel, des troubles du comportement et des troubles du sommeil.
\nhttps:\/\/www.smithmagenis17.org<\/p>\nCe jour l\u00e0, Marie Schmitt, pr\u00e9sidente de l\u2019association ASM 17 France viendra tout sp\u00e9cialement de Brest pour rencontrer les personnes du Grand Est atteinte du syndrome, et qui sont invit\u00e9es \u00e0 passer l’apr\u00e8s-midi \u00e0 l’ASG Voile.<\/p>\n
Une nouveaut\u00e9 vous attendra cette ann\u00e9e : des stages \u00ab\u00a0canetons\u00a0\u00bb pour les enfants de 4 \u00e0 6 ans \u00e0 l’aise dans l’eau.
\nL’autre objectif est de faire parler du syndrome le plus largement, afin d’aider les nombreuses familles encore dans l’errance diagnostique ou tr\u00e8s isol\u00e9es.<\/p>\n","protected":false},"excerpt":{"rendered":"
L’AS G\u00e9rardmer Voile ouvrira ses portes le samedi 27 juin apr\u00e8s-midi, \u00e0 partir de 14h00.\u00a0 A cette occasion il sera […]<\/p>\n","protected":false},"author":42,"featured_media":92051,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[20,5647,18],"tags":[65],"class_list":["post-92050","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-a-la-une","category-gerardmer-autres-sites","category-vosges","tag-asg-voile"],"acf":[],"yoast_head":"\n
Portes ouvertes de l'AS G\u00e9rardmer Voile - Gerardmer Info<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2026\/06\/portes-ouvertes-de-las-gerardmer-voile\/\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:title\" content=\"Portes ouvertes de l'AS G\u00e9rardmer Voile - Gerardmer Info\" \/>\n<meta name=\"twitter:description\" content=\"L’AS G\u00e9rardmer Voile ouvrira ses portes le samedi 27 juin apr\u00e8s-midi, \u00e0 partir de 14h00.\u00a0 A cette occasion il sera […]\" \/>\n<meta name=\"twitter:image\" content=\"https:\/\/vosgesinfo.fr\/app\/uploads\/sites\/6\/2026\/06\/flyer-portes-ouvertes-2026-1.jpg\" \/>\n<meta name=\"twitter:creator\" content=\"@VosgesInfo88\" \/>\n<meta name=\"twitter:site\" content=\"@VosgesInfo88\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"QG\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2026\/06\/portes-ouvertes-de-las-gerardmer-voile\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2026\/06\/portes-ouvertes-de-las-gerardmer-voile\/\"},\"author\":{\"name\":\"QG\",\"@id\":\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/#\/schema\/person\/db5605779a843dad16b5368f3e7613a5\"},\"headline\":\"Portes ouvertes de l’AS G\u00e9rardmer Voile\",\"datePublished\":\"2026-06-04T03:57:03+00:00\",\"dateModified\":\"2026-06-02T07:49:30+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2026\/06\/portes-ouvertes-de-las-gerardmer-voile\/\"},\"wordCount\":239,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/#organization\"},\"image\":{\"@id\":\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2026\/06\/portes-ouvertes-de-las-gerardmer-voile\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/vosgesinfo.fr\/app\/uploads\/sites\/6\/2026\/06\/flyer-portes-ouvertes-2026-1.jpg\",\"keywords\":[\"asg voile\"],\"articleSection\":[\"A la une\",\"Gerardmer\",\"Vosges\"],\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2026\/06\/portes-ouvertes-de-las-gerardmer-voile\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2026\/06\/portes-ouvertes-de-las-gerardmer-voile\/\",\"url\":\"https:\/\/vosgesinfo.fr\/gerardmerinfo\/2026\/06\/portes-ouvertes-de-las-gerardmer-voile\/\",\"name\":\"Portes ouvertes de l'AS G\u00e9rardmer Voile - 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<\/a>Et ce sera l’occasion de mettre \u00e0 l’honneur l’Association Smith Magenis 17 France, qui soutient et accompagne les personnes atteintes du syndrome de Smith Magenis et leurs proches. La participation de 5\u20ac pour le gouter sera revers\u00e9e \u00e0 cette association, qui accompagne en particulier un jeune gar\u00e7on du club, Armand, \u00e2g\u00e9 de 17 ans.